Trial,but with no error!
At the beginning of the "Covid Period" I was diagnosed with Attr wild type Amyloidosis and on my Google research, my reaction "was devastation"!
The hospital consultant reassured me that this was "not the end of the world" with the medication that was available!
Because of various restrictions at this time, a "waiting period" began, but after many months a telephone call was received from a well spoken man who said he was ringing from Richmond Pharmacology (RP),.......who I said,....never heard of them!
He then explained that my name had been received by them for me to attend the trial for Amyloidosis.
This gentleman was polite, courteous and well spoken in reassuring me that this trial could be of great benefit for myself. Would I like to attend with my first reaction as "YES"!
A few days later, I found myself in a taxi being transferred to RP, it felt great as all arrangements had been put into place by RP.
On arrival, I was welcomed by a lady named "Shami", who put all my fears to rest.
After a Covid test I found myself in a "side-room" munching my favorite biscuits and sipping a lovely cup of coffee.
The gentleman who I had spoken too on the phone brought me papers etc for observation, he explained everything and anything that I was not certain of....ask.
After a lengthy meeting,I felt fortunate at being accepted in a life saving,clinical trial and duly signed the relevant papers and thinking my life had been extended by many years!
Little did I know that several years later, I would be still coming to "RP"!
It would be wrong for me to say that no errors or mistakes had not taken place, after all......we were on a learning curve!
Anything that had gone wrong was duly acknowledged and the matter sorted, other people who followed could now have the benefit of this mishap.
During several months of attendance at "RP", accommodation was provided for which I am most grateful.
All-in-all, I found the staff most supportive when asking questions for reassurance, David Applegate was always there if need be in answering any complex questions, if not he would get back to me by e-mail or telephone. What more could anybody ask for?
Looking back, the taxi driver's would ask me on how the trial had gone, would I like to see anything on my return journey home. I found the taxi drivers to be most courteous, well mannered and willing to go that "extra-mile" in making my trip a memorable one.
The staff who I have not mentioned, apologizes given, your help and understanding at the time given was always of paramount importance, you helped me to understand the meaning of "co-operation", your help was most reassuring.
So.....I am on a second stage trial and receiving the relative medication and feel great, in fact, my blood results are better than when I started on this trial.....what more can I say!
Looking back on how "RP" have looked my well being, I would highly recommend them to anybody who is thinking of participating in the Amyloidosis Trial or any of the trials, these could be of benefit.
Thank you Richmond Pharmacology.
29 mars 2026
Avis spontané